Key Topics on End-of-Life Care for African Americans

Key Topics on End-of-Life Care for African Americans An intellectual discourse derived from The Last Miles of the Way Home 2004 National Conference to Improve End-of-Life Care for African Americans

TABLE OF CONTENTS The Duke Institute on Care at the End of Life is pleased to share with you selected items from "Key Topics on End-of-Life Care for African Americans," an intellectual discourse derived from The Last Miles of the Way Home 2004 national conference to improve end-of-life care for African Americans. Chapter 1 Historical Perspectives on Racial Attitudes and the Impact of Health Care Disparities on End-of-Life Care in the African American Community Harold Freeman, MD Ralph Lauren Cancer and Prevention Center, New York, NY Richard Payne, MD Duke Institute on Care at the End of Life Commentary Kristy Woods, MD Maya Angelou Center for Minority Health, Wake Forest University, Winston Salem, NC Chapter 2 African American Perspectives on Pain & Palliative Care Richard Payne, MD Duke Institute on Care at the End of Life, Durham, NC LaVera Crawley, MD Stanford University, Oakland, CA Commentary September Williams, MD Laguna Honda Hospital, San Francisco, CA Chapter 3 Palliative & Hospice Care in HIV/AIDs-A Community CarePerspective William Johnson, MD Medical Director VITAS Healthcare Corporation, Chicago, IL Bethsheba Johnson, MSN,CNC,GNP-BC Luck HIV Health Care Center, Chicago, IL Pernessa Seele Balm of Gilead, New York, NY Commentary Beny Primm, MD Addiction Research and Treatment Center, New York, NY Chapter 4 Spiritual Care Near Life’s End including Grief and Loss in the AfricanAmerican Community Gwendolyn London, D. Min London & Associates, Silver Spring, MD Robert Washington, PhD, MDiv Montgomery Hospice, Rockville, MD Chapter 5 End-of-Life Care Ministry in the African American Church Kelvin Calloway, D. Min AME Church, Los Angeles, CA Gwendolyn London, D. Min London & Associates, Silver Spring, MD Chapter 6 African American Perspectives on Advance Care Planning Gloria Ramsey, RN, JD USC Center for Health Disparities, Silver Spring, MD Sharon R. Latson VITAS Healthcare Corporation, Chicago, IL Camilla Hudson Patient Advocate, Chicago, IL Chapter 7 Historical & Sociological Perspectives on Death and Dying in the African-American Community Karla Halloway, PhD Duke University, Durham, NC Commentary LaVone Hazell Palliative Care Training and Education Program (PTEP), New York, NY Chapter 8 The Future of Hospice Care for African Americans-Clinical, Policy & Caregiver Perspectives Bernice Harper, PhD Center for Medicare & Medicaid Services, Washington, DC Michelle-Grant Ervin, MD VITAS Healthcare Corporation, Washington, DC Fay Burrs, RN, BSN National Hospice and Palliative Care Organization HPCO, Alexandria, VA Commentary Congresswoman Donna Christian Christiansen, MD United States, Virgin Islands Chapter 9 Theological Perspectives on Death and Dying for African Americans: Christian Perspective and Islamic Perspectives Paul Smith, DMin First Presbyterian Church, Brooklyn, NY Ibrahim Abdul Malik, Ed.D. Imams Council of New York, NY Jeremiah Wright, Jr, D.Min Trinity United Church of Christ, Chicago, IL Chapter 10 Family and Psycho-Social Dimensions of Death & Dying in African-Americans Joseph Dancy, Jr., PhD, MDiv, THM Norfolk State University, Norfolk, VA Willie Davis, PhD National Association of Black Social Workers, Lansing, Michigan Commentary Andrea King Collier, Author, Flint, Michigan Chapter 11 Working Together: Organizing the Community to Effect Change in End-of-Life Care for African Americans Myra Christopher The Center for Practical Ethics, Kansas City, MO Deacon Rosalyn Priester Trinity United Church of Christ, Amani Trinity United Community Hospice Health Corporation, Chicago, IL Diane Deese VITAS Healthcare Corporation, Chicago, IL Chapter 12 Case Study/The Last Miles of the Way Home Town Hall Meeting Moderator: George A. Strait Jr. Assistant Vice Chancellor Public Affairs, University of California, Berkley, CA Biographies Resources

In Collaboration With: Duke Institute on Care at the End of Life Initiative to Improve Palliative Care for African Americans (IIPCA)