Resources
ICEOL Materials
The Unbroken Circle: A Toolkit for Congregations around Illness, End-of-Life, and Grief
An easy-to-use "toolkit" of resources for clergy and church-lay leaders to help them better understand and find practical ways to address end-of-life care issues in their congregations.
The Cunniff-Dixon Foundation Prizes Nomination Form
$95,000 in prizes recognizing physicians for outstanding contributions to end-of-life care and exceptional care for patients at the end of life.
Vesta
A 90-minute play designed to create a space for end-of-life dialogue in your community and open the discussion on everything from advance directives to hospices to family struggles with aging.
Key Topics on End-of-Life Care for African Americans
An intellectual discourse derived from The Last Miles of the Way Home 2004 National Conference to Improve End-of-Life Care for African Americans, with commentaries by Karla Holloway, Richard Payne M.D., Gwendolyn London D.Min., and Sharon Latson.
Jewish Ritual, Reality and Response at the End-of-Life: A Guide to Caring for Jewish Patients and Families
This guide, written by Rabbi Mark A. Popovsky, introduces Jewish beliefs and practices around illness, death and loss and provides practical suggestions for responding to the complicated situations where the clinical, religious, and cultural are entwined.
APPEAL: A Progressive Palliative Care Educational Curriculum for the Care of African American's at Life's End
An interdisciplinary training for health care professionals and other caregivers on caring for African American patients and families facing serious and life-limiting illnesses in hospitals, hospices, outpatient clinics, and nursing homes.
Annotated Bibliography of Articles on Spirituality at the End-of-Life
An annotated bibliography of almost 50 articles related to the study of spirituality and health at the end of life drawing from academic and clinical journals from 1998 - 2008.
African American Outreach Guide
A guide for hospices and other organizations interested in improving their outreach efforts to African Americans, offering outreach strategies and tools as well as providing a review of end-of-life issues relevant to African American communities.
In Faith Community Outreach Guide
A guide that provides key strategies to help hospice and palliative care providers build partnerships with faith communities in their area, establish model programs, and develop faith community outreach and initiatives
Offering Spiritual Support for Family or Friends
This informational pamphlet is designed for anyone caring for someone with a serious illness. It provides practical information on the spiritual issues people with serious illnesses face and concrete examples of how to provide support.
ICEOL Director Richard Payne's Commentaries
Dr. Payne has written commentaries on a wide array of end-of-life topics and has had his commentaries published in newspapers, journals, and other media sources nationwide.
Professional Medical Associations
American Pain Society
info@ampainsoc.org or webeditor@ampainsoc.org
Dr. Payne was president of APS from 2003-2004. A multidisciplinary organization of basic and clinical scientists, practicing clinicians, policy analysts and others. The mission of the American Pain Society is to advance pain-related research, education, treatment and professional practice.
The National Medical Association
Publicaffairs@NMAnet.org
The NMA promotes the collective interests of physicians and patients of African descent including parity in medicine, elimination of health disparities and promotion of optimal health.
The National Black Nurses Association
NBNA@erols.com
A national organization that works to investigate, define and determine the health care needs of black Americans and to implement change making available to black Americans and other minorities health care commensurate to that of the overall society.
The National Hispanic Medical Association
nhma@nhmamd.org
A non-profit association whose mission is to improve the health of Hispanics and other underserved populations. The NHMA represents 36,000 licensed Hispanic physicians in the United States.
Hospice & Palliative Nurses Association
hpna@hpna.org
HPNA seeks to exchange information, experiences and ideas; to promote understanding of the specialties of hospice and palliative nursing; and to study and promote hospice and palliative nursing research.
Palliative Care & Hospice Organizations
Duke Center for Palliative Care
jtulsky@duke.edu
Duke Center for Palliative Care offers an inpatient palliative care service at Duke Hospital, educational programs for medical students, residents, fellows, faculty, and staff, and conducts research to promote the relief of suffering for patients with advanced life limiting illness and their loved ones.
VITAS Hospice Charitable Fund
pam@vitascharityfund.org
A not-for-profit organization established by VITAS Healthcare Corporation to improve end-of-life care for individual patients and their families and to support fundamental societal change in end of life care.
American Academy of Hospice and Palliative Medicine
info@aahpm.org
An academy of physicians devoted to advancing hospice medicine in the United States.
Center to Advance Palliative Care
capc@mssm.edu
An organization dedicated to increasing the availability of quality palliative care services in hospitals and other health care settings for people with life-threatening illnesses, their families and their caregivers. CAPC’S website provides general information about palliative care and a questionnaire to help people determine whether palliative care might be right for them or someone close to them.
Growth House
info@growthhouse.org
An award-winning portal that serves as an international gateway to resources regarding life-threatening illness and end-of-life care. Its primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration.
National Hospice and Palliative Care Organization
nhpco_info@nhpco.org
Don Schumacher, president and CEO of NHPCO, is on the ICEOL Advisory Board. Dr. Payne is a member of the NHPCO Board of Directors. A membership organization representing hospice and palliative care programs and professionals in the United States. NHPCO is committed to improving end-of-life care and expanding access to hospice care while enhancing quality of life for those who are dying as well as their loved ones.
American Hospice Foundation
ahf@americanhospice.org
The American Hospice Foundation supports programs that serve the needs of terminally ill and grieving individuals of all ages.
Caring Connections
caringinfo@nhpco.org
This national consumer engagement initiative to improve care at the end of life is a program of the National Hospice and Palliative Care Organization (NHPCO). It aims to provide free resources, information and motivation for actively learning about end-of-life resources and to promote awareness of and engagement in efforts to increase access to quality end-of-life care.
Promoting Excellence in End of Life Care
excell@mso.umt.edu
Jeanne Twohig was deputy director from 1997-2005. Dedicated to long-term changes to improve health care for dying people and their families through the work of innovative demonstration projects and national workgroups.
Dying Well
IByock@dyingwell.org
This site seeks to define wellness through the end of life by providing resources for people facing life-limiting illness, their families, and their professional caregivers.
Hospice Foundation of America
info@hospicefoundation.org
Hospice Foundation of America provides leadership in the development and application of hospice and its philosophy of care with the goal of enhancing the American health care system and the role of hospice within it.
Life’s End Institute
info@lifes-end.org
Jeanne Twohig is a member of the National Advisory Board. Life’s End Institute (LEI) works to improve how people experience dying, care-giving, death and bereavement, focusing on community-based research and public engagement to foster social change.
Supportive Care Coalition: Pursuing Excellence in Palliative Care
The Supportive Care Coalition is committed to bringing about cultural change regarding pain and symptom management for persons and families affected by life- threatening illness. Its focus includes the facilitation and support of systemic change within Catholic health care and maintaining and strengthening the Catholic voice in end-of-life care.
Toolkit of Instruments to Measure End of Life Care
Joan_Teno@brown.edu
These tools should identify opportunities for improving medical care, examining the impact of interventions or demonstration programs, and holding institutions accountable for their quality of care. The Toolkit offers patient-focused, family-centered survey instruments that address the needs and concerns of patients and their families, as defined by them.
-
The Social Work in Hospice and Palliative Care Network
A national organization working to unite social work professionals, consumers, and stakeholder organizations in the field of hospice, palliative and end-of-life care.
Project Compassion
james@project-compassion.org
Project Compassion creates community and provides support for people living with serious illness, caregiving, end of life and grief. This organization offers a wide range of community-based tools, resources, model programs and trainings for individuals, organizations and communities.
Professional Education
ELNEC (End of Life Nursing Education Consortium)
nbrown@aacn.nche.edu
The ELNEC core curriculum is administered by the American Association of Colleges of Nursing. It was developed to prepare qualified nurse educators to provide end-of-life education for nursing students and practicing nurses, and to provide resources to facilitate that instruction. These educators in turn will use the curriculum to integrate end-of-life content for students in undergraduate nursing programs, and offer staff development/continuing education programs for clinical nurses who provide end-of-life care.
EPEC (Education in Palliative and End of Life Care)
info@epec.net
Our mission is to educate all healthcare professionals on the essential clinical competencies in palliative care.
EPERC (End of Life/Palliative Education Resource Center)
jrehm@mail.mcw.edu
The purpose of EPERC is to share educational resource material among the community of health professional educators involved in palliative care education.
Pastoral and Religious Organziations
American Association of Pastoral Counselors
info@aapc.org
The American Association of Pastoral Counselors strives to provide and promote theologically informed, spiritually sensitive, ethically sound, and clinically competent counseling.
Association for Clinical Pastoral Education
acpe@acpe.edu
A professional association committed to advancing experience-based theological education for seminarians, clergy and lay persons of diverse cultures, ethnic groups and faith traditions.
Association for Professional Chaplains
info@professionalchaplains.org
A multifaith association established to certify and serve its membership and to promote professional chaplaincy.
National Association of Catholic Chaplains
info@nacc.org
A professional association for certified chaplains and clinical pastoral educators that provides standards, certification, education, advocacy and professional development for members in service to the church and society.
National Association of Jewish Chaplains
info@najc.org
This organization strives to help Jewish chaplains provide quality religious and spiritual care through setting certification standards for qualified Jewish chaplains, promoting their ongoing education, advocating on their behalf, and providing opportunities for mutual support.
Academic Organizations
The Centre for Spirituality, Health and Disability
Based in the School of Divinity, History and Philosophy, King’s College, University of Aberdeen, the Centre explores the relationship between spirituality, health and healing and the significance of the spiritual dimension for contemporary healthcare practices and the theology of disability. It brings academics, researchers, practitioners and educators together to develop innovative and creative research projects and teaching initiatives.